Just a quick update on the swallow test...it turns out they had time available this morning so they tested him earlier than they had planned. The bad news is he failed the swallow test. This is not the news we hoped for, but on the bright side, his speech therapist said he has improved greatly from the previous test done a few months ago. Apparently he was very close to passing, but there is still a small amount of fluid being aspirated into his lungs and they just can't take the chance. She has hopes that when she tests him again in three weeks his swallow will be even stronger and he may pass. So there is hope that three more weeks of capping off his trach will really strengthen his throat muscles and he will finally move on.
Mom said although he failed, he is in good spirits and said, "You know, eating is overrated anyway. It really wastes a lot of time." So we are hopeful the next test will bring better results. Thankfully, he is still breathing independent of the trach and is able to talk all the time. Because he is finally able to speak freely, he would probably enjoy a few visitors at the hospital. We don't want to overwhelm him, but feel free to stop by for a quick visit, usually shorter is sweeter in case he's wiped out. Weekends are the best time, as he has no therapy and the hospital is pretty quiet in general. Otherwise, late afternoons to evenings are good. Just be warned that he has dialysis Tuesday, Thursday, and Saturday for three to four hours each time, and he can't have visitors in the dialysis center. On weekdays he is pretty busy with therapy until 2 or 3 in the afternoon, so he usually doesn't have time to chat. He will most likely be at Froedtert for another month or so, so anytime in the next few weeks should be fine.
Thanks for loving our Pops...and us too. We are really feeling God's love through your kindness to our family. I pray that you are being blessed as well. Onward and upward...
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VISITORS! YEAH!! I've peeked in on him a few times while I was at Froedert but haven't gotten to hear his voice. Can't wait! Any rules besides be healthy and keep it short? I know how long this feels, believe me I do. I wish I had something brilliant to say or some trick to make it go faster, but I don't. Have a great Easter (if you want to they'll let you have your family Easter up there in one of their multipurpose rooms).
Oh, and I think a Service Monkey would be the perfect addition to the Bohrman family. Somehow that picture just fits...
Love,
Julie
Dialysis on Tuesday, Thursday and Saturday. Therapy til 2 or 3 most afternoons? Geez! Bohr's schedule is busier than mine!
And that's a good thing. He was born to be busy. Now he's got a smokin' new chair, and he can SPEAK!
So far, I've heard him semi-whisper the chorus of the classic car tune "Hot Rod Lincoln."
Maybe now he can SING it!
Keep battling, Bohrmans. We're all behind you.
- Mike Miller
Amy....are you sure your dad isn't purposely failing the swallow test to avoid having to possibly begin eating your mom's cooking?
Let's tell him Jean's enrolled in cooking classes and I bet he will pass the test next time.
For now we have lots of answers to prayers....no set backs, in therapy, good spirits, a chair that is faster than lightning!
Keeping all of you in our prayers!
Ma Hall
Happy Easter, Bohrs...the celebration of Hope, among other 'things'. Without Hope we ALL are doomed. Thank God for Hope......the daily medicine for any ailment.
Love,
Arch
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