Sunday, April 29, 2007

Possibilities

Things are still going pretty well for the Popster. He spent another Sunday afternoon at home with Mom, Becky, and the grandkids...and I'm told it was a good day. Dad said that each time he leaves the hospital (and it's only been 3 or 4 times) it seems to get a little easier. I'm so thankful that it's taking so long to get him home for good because it's allowing him to gradually ease into reality...it really is a blessing. Too much reality too fast would be too stinkin' hard...for all of us. So he came home for another beautiful sunny Sunday and mom got to test out the new transfer lift she had ordered. It allows her to get Pops in and out of his chair all by herself. She said it worked well. He also got to test out his new bed and his 'go-go-gadget' mattress that automatically turns him every 30 minutes. It's very high-tech, very James Bondish, and very cool. What we won't do for our Pops.

I guess they even ventured out of the driveway and took a walk downtown with the grandkids. I asked how dad did with that, and mom said he did pretty well. He said it's hard to hear the sound that his wheelchair makes on the sidewalk because it reminds him of the sound his rollerblades made. As mom said, there's no looking back...all we can do is look forward.

It was a good day...no mishaps, no surprises. Mom has a twin bed pushed next to dad's and I guess they were resting (or trying to) as the grandkids jumped all over them....what a great picture. I know dad loved it. Little Mikey even feel asleep on Bapa and they took a nap together. How beautifully normal.

His coming home is probably still about two weeks away due to some possible surgeries in the future. There are some exciting things happening...nothing for sure, but the possibilities alone are exciting. First off, they will be doing some work on his trach hole to get it to close...it should have closed on it's own by now, but it hasn't and he still loses a lot of air when he speaks. So this week they should have it closed for good and maybe then a fourth swallow test right away. That would rock.

They are talking about another surgery soon to implant a dialysis catheter that would allow him to have dialysis at night while he sleeps. This would be so great as he hates dialysis...it's long, boring, and takes up a good chunk of his day. If he gets this surgery, he could do his dialysis at night three times a week and sleep through the whole thing. That would rock.

The most exciting possible surgery would be a nerve transplant in his left shoulder. The doctors want to go in and try to repair/transplant many of the nerves that were damaged in the accident. The best outcome of this would be movement in that shoulder. That would rock.

It sounds like all of these surgeries could be happening soon, and we pray that they do. Lots of possibilities for change in the next few weeks, and that's exciting. As a person that hates change, I'm actually learning to embrace it, even the kind that rips the floor out from under you. Because no matter what change brings, we serve a God that doesn't change; a God that in a world of pain, confusion, and chaos, remains solid as a rock. Change is good. Bring it on. With God, all things are possible.

And that rocks.

Thursday, April 26, 2007

Flying Bologna

Pops has been pretty tired lately. His days continue to be busy with rehab, dialysis, and all his therapies. His left arm has been causing him a lot of pain lately, and though they can't say for sure that his nerves are growing back, we of course hope they are. The pain comes on quickly and is sharp and intense, which according to his therapist is a good sign. He is on meds for the nerve pain, but it's hard not to get a little excited when I see him wince. It seems sorta backwards to be happy that he's in pain, but it's exciting to think he may be gaining movement in that arm.

Because of the pain, the doctors wanted to explore the arm further so he had an MRI and also a nerve test done. Even after the tests they can't tell us that for sure that his arm will gain movement, but they also can't say that it won't. The nerves in his shoulder are definitely damaged due to the nature of the accident and not due to the spinal cord injury. So it's questionable if he will ever get shoulder movement in the left side. But the arm is a little more hopeful...there's more potential for nerve regeneration there. There may be a possibility in the future for surgery to try and repair the shoulder, but at this time all we can do is wait and see. The doctor that performed the nerve test (an acupuncture-like thing involving lots of needles) was surprised at what he saw. After looking at the x-rays and studying the damage done to his neck and shoulder he looked at dad and said, "Based on what I see, there's no reason you should be alive right now."

Funny how one little sentence can knock you into reality. He's alive. He shouldn't be. But he's alive. Not only alive, but alert, competent, and dare I say healthy? How blessed are we? Once in awhile, it's good to take the focus off the paralysis, dialysis, and nerve damage and realize that, for cryin' out loud, we've still got our dad. There may be no medical reason that he's still with us, but obviously God has a reason for him to be here. And, thankfully, God trumps medicine.

Mom continues to get ready for his arrival home in a few weeks. A hospital bed was delivered to the house and she ordered a special lift to assist with transfers. When I asked dad how he felt about coming home, he said he was 'neutral'. He's very used to the hospital routine, he knows what to expect, and he said he's quite comfortable there. If something goes wrong, you just push a button and a nurse appears in the door. If he needs anything at all...boom, there it is. Push a button at home and he'll be lucky if he gets a piece of bologna thrown at him. Relax...I'm kidding. Mom won't throw any food at him. She can't cook, silly.

We pray that the next few weeks are smooth for dad and that he has peace about the big move home. We thank God for bringing him this far; for giving him, and each of us, a reason to be alive.

Monday, April 23, 2007

Aw, Nuts

I can't believe it, but dad did not pass the swallow test. Aye carumba. We are all disappointed. His speech therapist said his swallow is better than last time, but she's still not comfortable letting him eat yet. Because he literally did not use those muscles for four months, it takes time for them to gain strength. So we wait another 3-4 weeks and he'll try for a fourth time.

Sure, it's a big fat bummer, but you know what? There's too many good things going on for a failed swallow test to get us down (just read yesterday's post). Pops feels the same way. So what if he waits another month before he can eat or drink....maybe that's just more of God's perfect timing. With all the exciting commotion that the next few weeks promises, maybe tube feeding will just be easier for all of us. It's all good.

But now I'm starting to think dad really is avoiding mom's cooking. Hmmm....it's certainly possible....

Sunday, April 22, 2007

What A Day

Wow. We had a pretty great day today. For the first time, dad was able to leave the hospital, and this time he went farther than the parking garage. (Mom got an awesome new accessible van and yesterday she and Pops went for a cruise. But they were feeling a little nervous about leaving the safety of the hospital, so they ended up driving from the first floor of the parking garage up to the fifth floor and back again. Not the most scenic drive, but we're all about baby steps here.)

But today was a different story! Fans and I met mom at the hospital to pick up dad, and I'll admit we were all feeling pretty anxious. Dad also had mixed feelings about the day. After almost five months in the hospital, it's a major deal to load up in a van, leave the nurses behind, and head out on the road. Basically, Pops has to trust us to care for him in case something were to go wrong, and that can be a little scary....for all of us. But we did it! And we're all feelin' good...

We got to show him the house Fans and I will be moving into soon, and then we headed to Mike and Becky's where he and mom will be living when he leaves the hospital permanently. We weren't quite sure how easy it would be for him to get around the house, but it turned out to be really quite accessible for him. Mike and Becky designed it well, and he was impressed with all of it, especially his huge bathroom that's been customized for his needs. We spent the rest of the afternoon outside playing with the grand kids, hanging out in the sunshine. It was beautifully normal. Well, there was one minor mishap, but we dealt with it. (And by "we" I am referring directly to the B-Team.) Yeah, that's right...we came, we saw, we boweled. It was empowering. It was fantastic. Well, I guess it's mostly mom who should be proud, but we were able to transfer dad with no problem, and it was a relief to know we could do it, and do it well!

The quote of the day came when Mike and Fans were moving a heavy sofa into the garage. As we watched them strain and grunt, dad said, "Hmm. Finally a moment where I'm actually happy to be a quad." See...there are benefits...

All in all, a great day. A chance for dad to live in reality, if only for an afternoon. A chance for all of us to see what our new life will be like. A much different life, but life nonetheless. We agreed that we'll probably be spending many future Sunday's much like this one. Hanging outside, watching the kids play, chillin' on lawn chairs. Sounds pretty normal, right? I love normal. Normal is nice.

We got Pops back to the hospital by 5:30 p.m. and he was pretty wiped out. He agreed it was a great day and went better than expected. I think we all realized that, as a family, we're going to be okay. There will be surprises and mistakes and challenges, but you know what, we're going to be okay. I am in awe of how God is working this out, how he is bringing us together in ways we may have never experienced otherwise. What a blessing. Thank you God for leading us through today.

And tomorrow could be just as huge. At 9:30 a.m. Pops will be taking the swallow test for the third time. We pray, pray, pray that he finally passes and it's bye-bye stomach tubes. This has been a challenge for him the last few months, so we are praying the third time really is a charm. We have no doubt that whatever the outcome, it's all going to be okay. Not because of our own strength or our own abilities, but simply because with God all things are possible. It's only because of Him that we are able to do anything, we are never beyond the reach of his grace.

We give Him all the glory.

Wednesday, April 18, 2007

The B-Team

Dad continues to plug along...rehab, dialysis, therapy...he's a pretty busy guy. He could have his third swallow test at the end of this week, or else early next week. His speech therapist said his swallow is much stronger than even a few weeks ago. Woo hoo! Slowly but surely. His left arm continues to have some pain and tingling, and it's unsure how long that will last. We continue to pray that those nerves are growing back.

I got to hang out with dad tonight and we spent some time going through some blogs...he said it's great for his spirits to read not only the comments but the older posts as well. We read one from December where we were rejoicing because he had breathed on his own for 20 whole minutes...yikes, how far he's come! Thank God for the many, many baby steps (or in his case, wheel rotations) that dad has taken.

There's much to be learned in the next few weeks...I got to help with a transfer tonight and was even asked if I was going to be a part of his "bowel program". Dad and I just looked at each other and laughed. There's nothing funny about the reality of his condition and all it entails, but sometimes you just have to laugh. As I contemplated being bowel trained, Pops said, "Well, now you've got something to write about tonight...a private invitation to be on my bowel team!" Not an invitation I thought I would ever get, but, heh, I consider it an honor to just have been nominated...and I didn't even have a speech prepared...

Wow. So many new things to prepare for...many unexpected challenges ahead. Without faith in an all-knowing God and a good sense of humor, how could we do it? I'm thankful this is stretching our faith, cause no matter how strong your bowel team, without God we're pretty darn helpless.

Sunday, April 15, 2007

Cruisin' with Bapa

I haven't been able to see Pops since Wednesday, but mom says the past few days have been pretty good. He had a great visit with good buddy and fellow quad Jason Hall on Friday. Jason has always been a close family friend and now of course he and Pops are closer than ever. He is a great resource for our family and understands dad better than probably anyone. I see many shenanigans in their future....hopefully they can stay out of trouble.

Today dad had a good visit with Mike, Becky, and the grand kids. I guess Cole and Paige got to ride on Bapa's lap and cruise the halls. Even Mikey joined in the fun...I wish I could have seen all three of them on his lap...must have been pretty cute. Pops continues to enjoy his freedom and joined everybody for lunch in the cafeteria...more momentous than it sounds, of course. I know it must be tough for dad...he was always a hands-on grandpa, always with a kid in his arms. But I hope that he is learning to enjoy being a different kind of Bapa. He may not be able to hug and squeeze, but that doesn't mean they have to stop squeezin' him...

There is a specific prayer request we have...he has been feeling a lot of pain in his left arm, which is the arm that he has no movement in. He is able to pinch the fingers a little bit, but he can't lift the arm itself at all. But recently that left arm has been very sensitive...even when mom puts a blanket over it dad feels pain. This may or may not be a positive. It could be a sign that his nerves are growing back and he is regaining movement. Or it could mean nothing. No one can say for sure what it means, but we are praying it may be a sign that his left arm is waking up and there could be movement in the future. So if Pops comes to your mind, pray for his left arm!! Who knows what could happen?? Having left arm movement would be hugely beneficial for him...and at this point it seems to be good sign that he feels so much pain in it. We'll see...

He just finished his last round of antibiotics so we also pray that he remains healthy. It will be the true test to see if all the infections he's dealt with in the past are really gone. Let's pray they are.

Continued blessing, continued growth, continued prayers...God remains steadfast. To Him be the glory.

Thursday, April 12, 2007

Better Than Football

Continued forward progress on the Pops front....slow but steady. Therapy is going pretty well, and dad is taking advantage of finally feeling healthy after months of struggling with one issue or another. On the wall of his room was posted a story he had written himself...the letters are scribbly but certainly legible. I know he gets down about his abilities and how long it takes him to do things, but to see a paragraph he had written was very exciting. His story involved a fair maiden named Jean who lived in a castle with her grandchildren and a handsome prince...hmmmm...vaguely familiar...

It was great to see him trach-free, but since he loses some air through the hole he has to cover his throat with his hand to speak. But he sounds really good. His voice is a little weak, and he needs to take a breath after each sentence, but hopefully he will get stronger. Due to his accident and the damage to his diaphragm, he may never have the voice or breath strength that he used to, but to us he sounds great. His blood sugar has finally stabilized so he no longer needs insulin every day. For him that means no more finger pricks! Yahoo! The doctors still plan to send him home in 2 to 3 weeks, so mom is working on buying an accessible van to make the transition smoother. A sweet ride to go with his sweet chair...

The crazy snowstorm yesterday which began as a headache for me turned into a magical night with my Pops. As I headed to the hospital to stop in and see dad on my way home to Chicago, I spun out on I-94 and 360'd my way across three lanes of traffic without getting hit. A miracle in itself...but it spooked me so bad I told dad I wasn't leaving till the snow stopped. So my expected one hour stop turned into a long night hanging out with Pops...and what a blessing it turned out to be. For the first time ever, dad asked if I would show him the blog, so I followed him to the gym and we hopped on the computer. He has heard about the blog and how it works, but has never quite been ready to face reality and all that has happened to him in the past four months. He was pretty blown away...the pictures of him in the beginning, his very critical condition, all the people that have been reading about him and praying....he just couldn't believe it. He cried...a lot. I kept asking if it was too much, if we should go back to his room, but he said, "No, no, I want to read it." Even I had forgotten much of what he's been through, and it was good to go back and realize just how far he's come. Unbelievable. We only went through a few of the first posts and the most recent, but he really loved it. I think it's good for him, sort of helps the healing process, I suppose. Know that he greatly appreciates the prayers and comments...he was blown away to say the least.

The night only got better...he escorted me down to the cafeteria for dinner (well, I ate and he watched, but it was precious nonetheless) and it hit me harder than I thought it would. I looked around and wanted to yell, "Helllllo, people, yoo hoo!...do you see me over here?? I am eating dinner with my Pops!...do you have any idea how amazing this is?" But the general public seemed pretty oblivious to the fact that the cafeteria was offering much more than Swedish meatballs that night. It was offering a slice of 'normalcy' for us as, day by day, we seem to get a little piece of our Pops back. Yes, it's going to be very tough moving back into the real world, but I have never been more sure of God's perfect timing. His absolute, precise, never a second late timing. Mom is still readying the house for dad to move home, but it should be done in about 2-3 weeks. Perfect timing.

I had said goodbye and was leaving dad's room last night when he said, "Ames?"
I stopped and turned around. "Yeah?"
"Better than playing football, right?"
I smiled. "Yeah. Without a doubt, Pops, better than football."

God is smart. Way smart. What a privilege to be used by Him in this way. And how awesome to watch as before our eyes He is turning pain and suffering into something beautiful. God is good.